Being Rare Is All I’ve Ever Known

Being Rare Is All I’ve Ever Known

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Being Rare Is All I’ve Ever Known

If you were to sort through my medical records, you would notice that some of the files list my diagnosis as “SMA I/II.” I had a good chuckle the first time I noticed this. After all, there is no such thing as spinal muscular atrophy type 1/2. I was originally diagnosed with SMA based on milestones I didn’t reach. Because I hadn’t been able to crawl, roll over, or hold my head up unassisted, my…

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