Being Aware of Hope Is Half the Battle

Being Aware of Hope Is Half the Battle

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Being Aware of Hope Is Half the Battle

A certain responsibility comes with being diagnosed with a rare disease. Because we know the details of our illnesses best, it is up to us to educate the world about them, so that greater knowledge and investment can be brought to our communities. This leaves me wondering what story I should tell. Since undergoing a heart-lung transplant in 2018, I no longer live with pulmonary hypertension (PH) as a diagnosis. As a result, I’ve felt…

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