Are You Ready for World Sanfilippo Awareness Day?

Are You Ready for World Sanfilippo Awareness Day?

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Are You Ready for World Sanfilippo Awareness Day?

From posting a photo of their child’s hand in theirs, to switching out their Facebook frame, supporters are poised to mark World Sanfilippo Awareness Day, observed each Nov. 16. The aim is to heighten awareness of Sanfilippo syndrome, a genetic disorder that leads to a form of childhood dementia, and which is thought to affect one in 70,000 people. In addition to the general public, the awareness effort targets lawmakers, researchers, health professionals, and industry representatives.…

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