Living With EB Requires Some Creative Problem-solving

Living With EB Requires Some Creative Problem-solving

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Living With EB Requires Some Creative Problem-solving

My husband and I knew we would have problems to contend with after our son Jonah was born with epidermolysis bullosa (EB). We’d have to think about things like wound care, bandaging, tube feeding, and weight gain. What we didn’t know was how creative we’d have to become to solve the many “little” problems of living with EB. We’ve come to call it, “settling on a plan for survival” or “Meh, good enough.” These are…

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