RARE-X, Global Genes to Help Collect Rare Disease Patient Data

RARE-X, Global Genes to Help Collect Rare Disease Patient Data

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RARE-X, Global Genes to Help Collect Rare Disease Patient Data

In their continued efforts to improve health equity for people with rare diseases, Global Genes and RARE-X have joined forces to help advocacy groups collect patient data and make the most of that information. “Patient data is perhaps the most valuable asset rare disease communities can leverage to generate research interest and spur drug development in their condition area,” Craig Martin, CEO of Global Genes, said in a press release. RARE-X is a nonprofit that…

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