My Independence May Change, but Not Go Away

My Independence May Change, but Not Go Away

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My Independence May Change, but Not Go Away

I’m spending a couple days on the road right now, sharing some of my story and philosophies at a fundraiser. This is the first in-person event I’ve participated in since friends at Amicus Therapeutics invited me and my podcast co-host, Kyle Bryant, to their office in February 2020. I’m here on behalf of the small nonprofit, Nebraska Ataxia, which aims to support families with limited resources and are dealing with Friedreich’s ataxia (FA) get help…

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