Preparing to Be Caregivers for Adults With Duchenne MD

Preparing to Be Caregivers for Adults With Duchenne MD

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Preparing to Be Caregivers for Adults With Duchenne MD

Three of my boys were diagnosed with Duchenne muscular dystrophy when they were small. We’ve spent many years preparing to be caregivers for them as adults with Duchenne. We remodeled our home, added ramps to the front and back of our house, and upgraded to a wheelchair-accessible van. The boys did not need all these things when we did them, but we wanted to have them ready for when they would need them, as they…

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