Friedreich’s Ataxia Forces Me to Be a Spectator Mom

Friedreich’s Ataxia Forces Me to Be a Spectator Mom

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Friedreich’s Ataxia Forces Me to Be a Spectator Mom

A big part of my experience as a late-onset Friedreich’s ataxia (FA) patient is the disease’s impact on my role as a mom. My life is action-packed from the minute my busy 6-year-old son and 4-year-old daughter wake up until the minute they go to sleep. Toddler life doesn’t pause for fatigue, injury, or the blues. Baseball, swimming, gymnastics, carpool schedules, play dates, and Sunday school persist no matter what FA has me feeling that…

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