The Benefits of Writing a Monthly Column About EB

The Benefits of Writing a Monthly Column About EB

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The Benefits of Writing a Monthly Column About EB

In the spring of 2018, I was lucky enough to meet a member of the BioNews team (the parent company of Epidermolysis Bullosa News) at the European Conference on Rare Diseases and Orphan Products in Vienna. Brad, the director of columns, asked me if I was interested in writing a column about living with a rare disease. I didn’t know what to expect. But I was flattered and excited, and immediately agreed. Brad and I met…

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