Baby Emelia Brings a ‘New Normal’ to Our Family

Baby Emelia Brings a ‘New Normal’ to Our Family

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Baby Emelia Brings a ‘New Normal’ to Our Family

In August, my 2-year-old son, Alfie, became a big brother. While bringing a new baby into the world is an important life event for any family, when you are already raising a child with LAMA2-related muscular dystrophy, there can be even more to contend with. For about six weeks after the birth of Alfie’s baby sister, Emelia, I was unable to lift him. That was a big change for me, because at times, I’ve almost…

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