Ultra Rare Celebrity Jam to Raise Funds for Rare Disease Patients

Ultra Rare Celebrity Jam to Raise Funds for Rare Disease Patients

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Ultra Rare Celebrity Jam to Raise Funds for Rare Disease Patients

An upcoming fundraising weekend in Los Angeles, dubbed the Ultra Rare Celebrity Jam, will feature a chance to hear music played by world-renown musicians, and to raise funds for the Columbus Children’s Foundation (CCF). The CCF, in Research Triangle Park, North Carolina, works to accelerate the development of gene therapies for rare diseases such as aromatic l-amino acid decarboxylase (AADC) deficiency, and to promote access to these treatments for people who need them. The organization is particularly…

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