How to Advocate for Yourself or a Loved One With LEMS

How to Advocate for Yourself or a Loved One With LEMS

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How to Advocate for Yourself or a Loved One With LEMS

Raising a child with a rare disease like Lambert-Eaton myasthenic syndrome (LEMS) has its challenges. One area that was challenging for me was knowing when to push beyond the bounds of normal advocacy for something I knew my daughter Grace needed. With practice and time, I have grown stronger in knowing how to best advocate for her. Since Grace was diagnosed, I have had to heavily advocate for her on multiple occasions. Some days it’s…

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