The Importance of Connecting With the LEMS Community

The Importance of Connecting With the LEMS Community

305842

The Importance of Connecting With the LEMS Community

I felt very alone when our daughter, Grace, was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS). I had no idea where to turn for help. Our family didn’t know anyone with LEMS, or any other rare disease. Her doctor had limited resources and knowledge of the condition. We were walking blindly into unknown territory, and I was afraid. Looking back, it encourages me to remember that that period of feeling alone and helpless was short-lived. Mostly,…

You must be logged in to read/download the full post.