Lessons Learned From Unanticipated Positive Outcomes

Lessons Learned From Unanticipated Positive Outcomes

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Lessons Learned From Unanticipated Positive Outcomes

This is a follow-up to my previous column about my 26-year-old daughter, Abby, potentially being accepted into a clinical trial. To recap, my husband and I were recently notified that she might be accepted into a clinical trial for a drug called Kineret (anakinra). Researchers will study the drug’s effectiveness in mitigating certain symptoms of Sanfilippo syndrome, a terminal, degenerative disorder that’s within the family of lysosomal storage diseases. We were initially very excited about…

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