Group Focuses on Rare Disease Clinical Trial Participation

Group Focuses on Rare Disease Clinical Trial Participation

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Group Focuses on Rare Disease Clinical Trial Participation

Participation in clinical trials exposes rare disease patients to financial, physical, and emotional pressures, according to the results of a patient focus group series. “Rare disease trial participants are running an endurance race they are highly motivated to complete, but these incremental burdens negatively impact their ability or willingness to enroll or remain in clinical trials,” KimberLee Heidmann, vice president of patient services at Scout Clinical, said in a press release. Scout Clinical is a…

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