US Survey Reveals Patients Satisfied with Care, Quality of Life

US Survey Reveals Patients Satisfied with Care, Quality of Life

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US Survey Reveals Patients Satisfied with Care, Quality of Life

Most people with porphyria who responded to a U.S.-based online survey report being generally satisfied with their treatment plan, and many are open to participating in clinical trials. About two-thirds of the 70 surveyed patients said they are content with their quality of life, but just as many are pessimistic about the future, suggesting a need for additional support for this patient population. The survey ran from April 8 to Aug. 14, with the goal…

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