Parenting in a Duchenne Family Is Hard, But What About the Siblings?

Parenting in a Duchenne Family Is Hard, But What About the Siblings?

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Parenting in a Duchenne Family Is Hard, But What About the Siblings?

It’s tempting to label the siblings of those who have Duchenne muscular dystrophy as the “unaffected siblings.” But I can never seem to get those words out of my mouth. Siblings are indeed affected by Duchenne. In my family, the siblings, Lexi, Chance, and Mary, experience Duchenne daily, even though they don’t have it. Max, Rowen, and Charlie, my children with Duchenne, have physical needs they can’t meet on their own. Meeting those needs, in…

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