Acknowledging the Anniversary of My Diagnosis

Acknowledging the Anniversary of My Diagnosis

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Acknowledging the Anniversary of My Diagnosis

Historically, Aug. 19 is a hard day for me. That’s the day in 2013 when I was blindsided by a Friedreich’s ataxia (FA) diagnosis.  My emotional journey of advocating for myself to find answers to seemingly random neurological symptoms had reached a difficult, unexpected, and dramatic turning point. I was a 25-year-old newlywed with a world of possibilities ahead of her, who had suddenly been handed a degenerative and terminal neurological diagnosis. Now what? Well,…

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