‘Not Alone in the Dark’: New Guide for, by Caregivers of Children With Rare Diseases

‘Not Alone in the Dark’: New Guide for, by Caregivers of Children With Rare Diseases

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‘Not Alone in the Dark’: New Guide for, by Caregivers of Children With Rare Diseases

The National Alliance for Caregiving, in partnership with Global Genes, has issued a free guidebook, available online, that offers resources and support for caregivers of children with rare diseases. “The Circle of Care Guidebook for Caregivers of Children With Rare and/or Serious Illnesses” was designed by and for family caregivers so they don’t feel “alone in the dark,” according to a Global Genes press release announcing its publication. The new guide covers nearly 100 topics…

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