Guarding Against Comparing Our Situation With Others

Guarding Against Comparing Our Situation With Others

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Guarding Against Comparing Our Situation With Others

Some days are just harder than others. Wouldn’t you agree? Much of the time, I feel like we are moving along nicely on this rare disease journey. We are in a good rhythm with the treatment plan for our 16-year-old daughter, Grace, who has Lambert-Eaton myasthenic syndrome (LEMS). Yet, out of nowhere, I was hit with a wave of emotions brought on by the most unlikely of things. Intravenous immunoglobulin replacement therapy, or IVIG, has…

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