Sanfilippo Can Get in the Way of Celebrating

Sanfilippo Can Get in the Way of Celebrating

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Sanfilippo Can Get in the Way of Celebrating

I recently received exciting news! My 26-year-old daughter, Abby, has been selected to potentially participate in a clinical trial for a drug to help manage or minimize symptoms of her disease, Sanfilippo syndrome. My husband inquired about the trial over a year ago, and they contacted us recently to move forward. We live in Houston, Texas, and the trial is being conducted in California. If Abby is accepted into the trial, we will travel with…

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