Advocates Lobby US Congress During Virtual Rare Disease Week

Advocates Lobby US Congress During Virtual Rare Disease Week

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Advocates Lobby US Congress During Virtual Rare Disease Week

More than 600 people participated in the 10th annual Rare Disease Week on Capitol Hill 2021, held virtually July 14–22, to advocate for the rare disease community. Hosted by the EveryLife Foundation’s Rare Disease Legislative Advocates (RDLA) program, the event brings together community members from across the U.S. to learn about federal legislative issues, meet other advocates, and share their stories with policymakers. This year’s event featured 250 patient organizations and 367 meetings with Congress.…

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