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The Young and the Beautiful: Living With Scleroderma as a Young Adult

Someone once remarked that scleroderma is the “anti-glamorous” disease because it mainly affects menopausal women. But the condition also affects children, young adults, and men. In this column, we’ll hear from two extraordinary young women who are tackling scleroderma on their own terms. Amy Gietzen, 39, was diagnosed with scleroderma at 19. She’s now a group leader at the Scleroderma Foundation’s Tri-State Chapter, which includes New York, New Jersey, and Connecticut, and founder of the…