Rare Myopathy Affects Women, Too, Advocate Emphasizes

Rare Myopathy Affects Women, Too, Advocate Emphasizes

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Rare Myopathy Affects Women, Too, Advocate Emphasizes

After being diagnosed as a carrier of x-linked myotubular myopathy (XLMTM) and losing her infant twin boys to the disease, Ashley Walker was driven into an episode of alcoholism. What she didn’t know then was that her liver was affected severely by the disease, which eventually resulted in an emergency room visit for pancreatitis (inflammation of the pancreas). After gallbladder removal surgery, she vowed to change her outlook on life. “I found the strength when…

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