Parkinson’s Foundation Emphasizes Patient Role in Clinical Research

Parkinson’s Foundation Emphasizes Patient Role in Clinical Research

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Parkinson’s Foundation Emphasizes Patient Role in Clinical Research

The Parkinson’s Foundation is making an effort to put patients at the center of clinical research, both through its Research Advocates program and more recently, patient advisory boards, funded by the Patient-Centered Outcomes Research Institute (PCORI). Since 2008, the foundation’s advocacy program has trained more than 300 Parkinson’s disease patients across 28 states on how to interact with scientists and the U.S. Food and Drug Administration, create study protocols, and evaluate research. Of those patients…

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