Can You Keep a Secret?

Can You Keep a Secret?

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Can You Keep a Secret?

Medications come with warning labels. Maybe rare diseases should, too. Warning: Atypical hemolytic uremic syndrome may cause secrecy in patients and caregivers. aHUS is a rare and life-threatening condition, and there are many reasons not to share a diagnosis or prognosis. Within the family, patients may want to shield loved ones from the severity of their illness. But in the professional world, rare disease patients — whether they are employees, bosses, or self-employed — often…

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