Guidelines for Diseases Like Batten Are Small Nonprofit’s Guiding Goal

Guidelines for Diseases Like Batten Are Small Nonprofit’s Guiding Goal

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Guidelines for Diseases Like Batten Are Small Nonprofit’s Guiding Goal

Care Beyond Diagnosis is a small nonprofit run by a team of three, but it is taking on a large task for the rarest of rare diseases by focusing on clinical guidelines that make it easier for doctors to treat patients with these disorders. In April, it released the first clinical guidelines for CLN2, also known as late infantile Batten disease, which were published in the Orphanet Journal of Rare Diseases. The organization enlisted 21…

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