Partners to Develop Novel Tools for Global Rare Disease Research

Partners to Develop Novel Tools for Global Rare Disease Research

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Partners to Develop Novel Tools for Global Rare Disease Research

QualityMetric and Pulse Infoframe are collaborating to develop instruments across rare diseases to support global research initiatives, including those searching for treatments. The scientifically validated instruments and surveys would prospectively benefit patients and families as well as scientists, treatment developers, and advocates. More than 300 million people worldwide are thought to have one of the 7,000 or so known rare diseases. Of those conditions, 5% have an approved treatment. The partnership will marry QualityMetric’s clinical outcomes…

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