What It Means to Own My Hemophilia

What It Means to Own My Hemophilia

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What It Means to Own My Hemophilia

My nephew does not like needles. Actually, “hate” is probably a better word. He hates needles. This is not ideal, given that he has hemophilia. Recently, I was helping him practice IV infusions on a makeshift “arm” I created. As we talked, I told him, “You need to own hemophilia. You can’t let it own you.” As the words came out of my mouth, they made me think. How many people own their hemophilia? What…

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