The Challenges of Being a Sanfilippo Parent in the Summertime

The Challenges of Being a Sanfilippo Parent in the Summertime

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The Challenges of Being a Sanfilippo Parent in the Summertime

Y’all. I am tired. My son’s birthday was last week. Will turned 11. This was going to be a column about the bittersweet nature of birthdays when it comes to progressive, terminal diagnoses that have no treatment. About being so thankful for another year while also realizing that it brings you closer to the inevitable. About not measuring milestones in gains but in hoping to see fewer losses as the condition takes your loved one…

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