Why I Dislike Using the Word ‘Hope’ When Discussing Huntington’s Disease

Why I Dislike Using the Word ‘Hope’ When Discussing Huntington’s Disease

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Why I Dislike Using the Word ‘Hope’ When Discussing Huntington’s Disease

I’ve been a part of the Huntington’s disease (HD) community since my mom was diagnosed in 1995. I was 9 at the time. The gene mutation responsible for the disease had been discovered two years earlier, and community leaders were excited about the potential of the discovery to lead to new treatments. Since then, my brain has been infused with the word “hope.” I hoped that we were close to a cure, or at least…

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