Scleroderma Is Complicated to Explain and Challenging to Live With

Scleroderma Is Complicated to Explain and Challenging to Live With

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Scleroderma Is Complicated to Explain and Challenging to Live With

“Look, Mom!” My teenage daughter bounds excitedly into the room to show me her phone. The screen displays a message adorned with fancy scrollwork designs. She reads the words “June is Scleroderma Awareness Month!” Her smile radiates happiness. I know I should be elated that awareness is being spread through the popular social platform TikTok. But my heart aches every time my children talk about my disease. Since they were born, I’ve wanted to protect…

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