I Don’t Want a World Without SMA. Here’s Why

I Don’t Want a World Without SMA. Here’s Why

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I Don’t Want a World Without SMA. Here’s Why

When I was diagnosed with SMA, my parents were confronted with a pivotal choice: stay in Singapore or move the three of us to the U.S., where they’d heard there might be an experimental gene therapy that could treat me. It’s a decision that would have altered the course of our lives. However, my parents never got to make the choice for themselves. The effects of the 1997 Asian financial crisis were still rippling outward,…

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