Thanks to the Rare Disease Community, I Feel Less Isolated

Thanks to the Rare Disease Community, I Feel Less Isolated

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Thanks to the Rare Disease Community, I Feel Less Isolated

As I sit here working on my column, with a heating pad wrapped around my hip to calm down a recent injury, I wonder about the similarities among those of us with various rare disorders. Of course, someone like me with Ehlers-Danlos syndrome (EDS) faces different struggles than someone with pulmonary hypertension or sickle cell disease, for example, but what about the threads that tie different rare disorders together? Are they perhaps more important than…

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