International Batten Disease Awareness Day is June 9

International Batten Disease Awareness Day is June 9

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International Batten Disease Awareness Day is June 9

From participating in a virtual 5K to sharing family stories and videos, supporters are gearing up for International Batten Disease Awareness Day on June 9. The goal is to heighten awareness among the general public as well as  lawmakers, public authorities, industry representatives, scientists, and health professionals. Awareness and education are key to improving the recognition, diagnosis, understanding, and management of Batten disease, a group of rare inherited neurological conditions thought to affect about one…

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