Writing About Rare Disease for a Living Is Rewarding

Writing About Rare Disease for a Living Is Rewarding

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Writing About Rare Disease for a Living Is Rewarding

On April 1, I started full time at BioNews, the publisher of Muscular Dystrophy News Today, writing feature stories about the rare disease community. Since I first started writing articles in December 2019, my work has ranged from interviews with advocates, CEOs, and scientists to profiles on new organizations, and write-ups on various awareness events.  As someone with Duchenne muscular dystrophy, writing about people who face issues similar to my own has been a rewarding,…

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