Why I Run to Fight Batten Disease

Why I Run to Fight Batten Disease

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Why I Run to Fight Batten Disease

I’ve written a Batten disease column crammed with running metaphors since 2019, and a nonprofit blog with much of the same for far longer. I’ve run two half-marathons blindfolded and more than 30 half-marathons and races in nearly half of the 50 U.S. states. But why running, and why do I write about it? My sister, Taylor, was diagnosed with CLN1 disease (Batten disease) on a hot summer day in 2006. Two years later, she…

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