Learning to Find Joy in Life as a Sanfilippo Sibling

Learning to Find Joy in Life as a Sanfilippo Sibling

294400

Learning to Find Joy in Life as a Sanfilippo Sibling

The four years since my sister, Abby, was diagnosed with Sanfilippo syndrome have been a journey, to say the least. She has lost most of her speech and will continue to lose basic life skills as the disease progresses. Our family has had to adjust to a new normal knowing that this disease will take my sister’s life. One of the most difficult parts of readjusting after a diagnosis like Abby’s was recognizing good days.…

You must be logged in to read/download the full post.