Engaging in Open Dialogue With Doctors Helps Us Make Informed Decisions

Engaging in Open Dialogue With Doctors Helps Us Make Informed Decisions

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Engaging in Open Dialogue With Doctors Helps Us Make Informed Decisions

Most people in the rare disease community can relate to the constant march to various doctors in our quest to manage our health, or that of a loved one. Our doctors are invaluable. If we are really blessed, they walk compassionately beside us on the path to diagnosis and treatment. But sometimes I find my anxiety building as we draw closer to my daughter’s next neurology appointment.  There are numerous reasons for my anxiety. First,…

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