When CMT Challenges Pull Me Under, I Must Decide to Sink or Swim

When CMT Challenges Pull Me Under, I Must Decide to Sink or Swim

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When CMT Challenges Pull Me Under, I Must Decide to Sink or Swim

Living with an invisible, rare disease poses challenges, opportunities, and many lessons. I was diagnosed with Charcot-Marie-Tooth disease (CMT) type 1A as a toddler, and I’m now approaching 49. Those early memories of life with CMT are murky, but I recall visits to our local children’s hospital, where my pediatric neurologist was based, for physical therapy and a couple of nerve conduction tests, my nightly physical therapy sessions at home that my dad administered (I…

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