Parents of Rett Patients Report Reduced Quality of Life, Family Functioning

Parents of Rett Patients Report Reduced Quality of Life, Family Functioning

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Parents of Rett Patients Report Reduced Quality of Life, Family Functioning

According to their parents, children with Rett syndrome have diminished quality of life (QoL) across all measured dimensions, a study found. In the study’s parent-reported assessments, the neurodevelopmental disorder was associated with reduced family functioning, and with physical, emotional, and psychological symptoms that impact the children’s well-being and quality of life. “To provide adequate support to children with [Rett syndrome] and improve their QoL, it is first necessary to identify their needs and expectations,” the researchers…

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