When We Speak Up for Ourselves, We’re Also Advocating for Others

When We Speak Up for Ourselves, We’re Also Advocating for Others

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When We Speak Up for Ourselves, We’re Also Advocating for Others

Doctors, nurses, hospitals, and clinics are simply part of life with a rare, chronic condition such as hemophilia. Many people in the bleeding disorders community learn early on that speaking up for themselves and their loved ones is crucial to their care. Over the years of raising two sons with hemophilia, I have learned to advocate for my children. When I felt that my sons were not receiving the treatment they needed, speaking up was…

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