Acute Porphyria Puts High Burden on Patients, Caregivers in UK

Acute Porphyria Puts High Burden on Patients, Caregivers in UK

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Acute Porphyria Puts High Burden on Patients, Caregivers in UK

Patients with acute hepatic porphyria (AHP) and their caregivers face a high disease burden and diminished well-being, a recent U.K. survey has found. These patients also have diverse experiences in severity of attacks, managing symptoms, and accessing appropriate treatment.  The study, “Patient and caregiver experiences of living with acute hepatic porphyria in the UK: a mixed-methods study,” was published in the Orphanet Journal of Rare Diseases. AHP, or simply acute porphyria, comprises a group of…

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