A Little Understanding Can Go a Long Way for Rare Disease Sufferers

A Little Understanding Can Go a Long Way for Rare Disease Sufferers

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A Little Understanding Can Go a Long Way for Rare Disease Sufferers

When you live with a rare illness, it can affect every facet of life. I am a carer to my husband, Aubrey, who has hereditary ATTR amyloidosis. Since his diagnosis in 2013, the disease has become more evident with each passing moment, not only in the physical sense for Aubrey, but also in our interactions as husband and wife, his relationship with our children, and our rapport with friends. Most exchanges and affiliations have been…

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