What If My Child Did Not Have Sanfilippo Syndrome?

What If My Child Did Not Have Sanfilippo Syndrome?

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What If My Child Did Not Have Sanfilippo Syndrome?

My daughter Abby, 25, has Sanfilippo syndrome. It is a genetic, terminal disorder likened to Alzheimer’s disease. She was not diagnosed until 2017, at the age of 22. However, she was diagnosed with autism at 4, so for many years, I attributed her behaviors and delays to autism. Now that she has a more accurate diagnosis, it explains so much about her childhood. It makes me think back to Abby as a toddler, adolescent, and…

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