Caregivers of Children With CLN5 Sought for Neurogene Study Interviews

Caregivers of Children With CLN5 Sought for Neurogene Study Interviews

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Caregivers of Children With CLN5 Sought for Neurogene Study Interviews

Neurogene, a biopharmaceutical company developing therapies for Batten disease, is trying to learn more about the progression of the subtype CLN5 disease from the caregiver perspective. To that end, Neurogene is inviting the caregivers of children who are either living with CLN5, or who died within the past 12 months, to participate in a one-time phone interview about their experiences, according to an email provided by the company to Batten Disease News. The goal is…

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