US Angelman Nonprofits Create Working Group for Legislative Advocacy

US Angelman Nonprofits Create Working Group for Legislative Advocacy

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US Angelman Nonprofits Create Working Group for Legislative Advocacy

Two U.S.-based Angelman syndrome (AS) nonprofits have created a working group that aims to further awareness and treatment of the rare genetic disorder through legislative advocacy. The Foundation for Angelman Syndrome Therapeutics, known as FAST, and the Angelman Syndrome Foundation, called ASF, have formed a legislative group to advocate for three key rare disease initiatives. Two of those initiatives are legislation now before the U.S. Congress in Washington, D.C.: the Speeding Therapy Access Today (STAT)…

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