My Role as a Sanfilippo Sibling Includes Spreading Awareness

My Role as a Sanfilippo Sibling Includes Spreading Awareness

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My Role as a Sanfilippo Sibling Includes Spreading Awareness

My sister Abby has a rare, neurodegenerative disease called Sanfilippo syndrome. She was diagnosed in 2017, and life hasn’t been the same since. I’ve spent considerable time reflecting on my role as her sister, not only as a Sanfilippo sibling, but also as an advocate to spread awareness of this disease. In church last week, we prayed specifically for people who are sick. My first thought was my grandfather, who is currently in the hospital.…

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