To Redefine Angelman Syndrome, We Play the Game by Our Own Rules

To Redefine Angelman Syndrome, We Play the Game by Our Own Rules

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To Redefine Angelman Syndrome, We Play the Game by Our Own Rules

Dear Angelman syndrome, We read your definition, and we didn’t like it. Stating that a person with Angelman “can’t do this” and “can’t do that” wasn’t going to work for us. We opted for “I think we can” instead. Our angel, Jess, had boundless energy and was relentless and unfocused. This combination meant that there was no rest for the weary. It seemed like she was going nowhere fast. However, learning to channel these traits…

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