We Have Learned to Celebrate the Little Victories

We Have Learned to Celebrate the Little Victories

292224

We Have Learned to Celebrate the Little Victories

If anyone had told me three years ago how our life would look today, I would not have believed them. I never thought I’d be caring for a child with a rare disease. It is exhausting, rewarding, and I don’t think anyone can prepare for it.  Looking back to the onset of our daughter’s illness, we didn’t see warning signs or precursors to the symptoms that led to her Lambert-Eaton myasthenic syndrome (LEMS) diagnosis. Our…

You must be logged in to read/download the full post.